Rare Disease Research Grant Program | NORD
Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these studies ultimately …
Contact Us - National Organization for Rare Disorders
Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email communications here. …
Rare Disease News - National Organization for Rare Disorders
Dec 4, 2025 · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.
Patient Assistance Programs - National Organization for Rare Disorders
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial …
What You Should Know About Undiagnosed Rare Diseases | NORD
NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and potentially …
Getting Started - Understanding Rare Disease Information | NORD
Home / Understanding Rare Disease We acknowledge the hard work of families, caregivers and others with programs like NORD Caregiver Respite which allows people some time away while knowing …
Phenylketonuria - Symptoms, Causes, Treatment | NORD
May 8, 2025 · Learn about Phenylketonuria, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
Norrie Disease - Symptoms, Causes, Treatment | NORD
May 29, 2020 · Learn about Norrie Disease, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
Spinocerebellar Ataxia - Symptoms, Causes, Treatment | NORD
Jul 17, 2025 · Learn about Spinocerebellar Ataxia, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find
Patient Organizations - National Organization for Rare Disorders
Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.